Terms and Conditions

You are probably here because you or someone you love has recently been diagnosed with Henoch-Schöenlein purpura. If so, we hope you'll agree after spending some time here that you came to the right place. Though Henoch-Schöenlein purpura is the most common form of childhood vasculitis, we - like you, probably - had never heard of it before our daughter was diagnosed not long after her seventh birthday in March 2008. As we began to realize that this was going to be more significant than the standard colds, ear infections, and low-grade fevers that all kids get, we turned to the Internet for information.

There were many sites that had information, but most of them seemed to minimize the significance of the disorder. "Self-resolving within 4-6 weeks" they all said, somewhat dismissively. Worse, none of the sites we were able to find were written from a parental or layman's perspective with an eye towards sharing community information amongst HSP patients and their parents/families. As our case continued its dramatic roller coaster road with multiple hospitalizations (seven as of this writing), we began to look for support from the parent perspective. And we came up mostly empty. So we decided to build this site in the hopes that others might find it if they needed it. But first, please, we’d like you to read, understand and (where appropriate) agree to a few brief items:


  1. First, we are not doctors. We are not doctors, nurses or in fact any kind of certified medical professionals, and we cannot and do not dispense medical advice.

  2. While we created this site in the hope that it might serve as a starting point for those experiencing HSP (or their families), by accepting these Terms and Conditions, you are certifying that you understand information contained on this site is presented from a parental perspective and should not be misconstrued as professional medical advice.

  3. However, unless your case is very unusual (our daughter's was), we have probably been where you are and have experienced what you are experiencing. We can suggest topics that you may want to discuss with your care providers. We can sympathize with your frustration, fatigue and worry. We can suggest coping strategies. And most of all, we can invite others who have gone through this to offer their insight as well.


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