Hey, that's great news, bluey. I'm glad to hear that the numbers are slowly going where you want them to. That was our experience with Meredith, as well: once we got things moving in the right direction, things continued progressing in that direction. Glad to hear things are getting better for you a...

Honestly? There's no way to tell. However, the good news is that this means what you've heard or read about it usually "flaring up twice as bad" is not accurate, either. Of course, that is one of the things which could happen, but I wouldn't say it's anything like a certainty. Your son has...

I'd have to say no, in answer to your question of whether you can just put it behind you. If she's still having the occasional flare-up, proven by either a visible recurrence of purpura, or by either joint or stomach pain, then you're not out of the woods just yet. I know that's not the answer you w...

We were using the much-more-commonplace steroid Prednisone (per-oral, when in hospital, Meredith was given solumedrol, which I'm told is comparable in effect and strength). And even with that, yes: Meredith's face ballooned up, and she became angry and moody. I wouldn't worry that this is the way yo...

With our daughter, luckily, we didn't have to go the cytoxan route, though the nephrologist threatened it two or three times, if he didn't see improvement in our daughter's kidneys' condition. I think - and again, I am a layperson like you - that because the doctors really don't know what's going to...

Hi, gracieleesmommy, First, try not to panic. From the perspective of a concerned parent who would do anything to spare their children pain, this looks bad. And in fact, it IS bad. But it's not - usually - something that does permanent damage. The joint pain and abdominal pain are terrible, to be su...

That's excellent news, for only two months - especially given how badly it started out. Meredith took considerably longer than that to taper off to the "fine" stage. She's mostly out of the woods altogether now - though of course we are still vigilant for a relapse - but it seems that unle...

From that first post, anyway - that sure was a heck of a ride, at first. As far as neither mom nor dad being ready to even consider something like putting E's story up here, I completely understand...and I think you're probably wise to wait. Four to six weeks is indeed common....but you've already b...

With our Meredith, it took months for it to finally go away. Also, if your nephrologist hasn't told you yet (or you haven't figured out on your own), those numbers (the urine, not the blood) can vary widely, depending upon a variety of factors. What the doctors will be looking for is a general downw...

How is he? It's been a week since you posted that you were flying to Cleveland. The Cleveland Clinic is one of the country's best spots for HSP-type stuff. Though I've no personal experience whatsoever with it or any of it's staff (since I live in the south), I can't speak from experience, but inste...