Iam truly sorry to hear that. It's just never ending isn't it. Every time I read on here I just realise how lighly (crossing everything) we got away with it. I didn't even realise steroids could cause cataracts. Will she need an operation?
Love to you all
Lisa x

I have SO always wanted to go to one of these. Its slightly further for us to travel from the UK however. It wouldn't be the same over here.

Hi everyone, Sorry I haven't called in for a while we have been so busy with it being the summer holidays. Freya is doing well. Her rash finally cleared last week, you can still see the remnants of it under her skin but all in all its gone. So all in all it lasted about 6 weeks from first spot. She ...

Thanks so much for your reply. It just helps so much to know there is someone out there who knows something about all this! We were back at the hospital yesterday for check ups etc. Freya has a urine infection. The doctor seemed to think this was unrelated to HSP and simply that her body is low in d...

Hi there Our daughter Freya has just been diagnosed with HSP. She had been very tired for a couple of weeks and complaining of aching legs to the degree I thought she was perhaps 'coming down with something'. Last week she developed a large 'bite' on her knee. The next day she had a symmetrical red ...