Hi and thamks for reply.We like you are not at all happy with what our dr has had to say. Rachel had a very good week last week and was out playing an the relief we felt was just huge. Today however she has a lot of bruisin on the front of her legs and she continues to have chocking cough. Our GP is...

Hi there I'm back and it's been a tough time since last i posted. Rachel had her colonoscopy 2nd march and it didn't show anything except perhaps a weakened blppd vessel, her symptoms continue with recurring rashes, swelling of joints,hands and feet, extreme tiredness and lack of energy along with b...

Hi there I'm back and it's been a tough time since last i posted. Rachel had her colonoscopy 2nd march and it didn't show anything except perhaps a weakened blppd vessel, her symptoms continue with recurring rashes, swelling of joints,hands and feet, extreme tiredness and lack of energy along with b...

Hi there I'm back and it's been a tough time since last i posted. Rachel had her colonoscopy 2nd march and it didn't show anything except perhaps a weakened blppd vessel, her symptoms continue with recurring rashes, swelling of joints,hands and feet, extreme tiredness and lack of energy along with b...

Hi there I'm back and it's been a tough time since last i posted. Rachel had her colonoscopy 2nd march and it didn't show anything except perhaps a weakened blppd vessel, her symptoms continue with recurring rashes, swelling of joints,hands and feet, extreme tiredness and lack of energy along with b...

hi patricia I hope you don't mind all these emails but i feel you and all the mams and dads who use this wonderful site understand the worry of HSP. It doesn't look like i will be returning to work tomorrow as rachel developed a very high temp yesterday and was completely listless. We brouught her t...

Hi Patricia I hope Ailbhe had a good week in school and that her setback was minor. Our week was mixed, she passed some b lood in bowel movement at weekend and tested positive for blood in urine on monday but negative Tuesday. I bought a testing kit and she continues to have traces of protein in uri...

hello Patricia Thank you for your reply and tg Ailbhe is making such progress and wh at a relief that is for all of you. Rachel had urine tested today and tg it was clear but she has bruising on hands and was very tired. I am back to work monday so am hoping that these latest symptons will pass quic...

Hi Patricia Thank you for Dr. Atif's name,we actually met him last December but Rachel had no kidney involvement at that time. She has had a lot of blood in her poo over weekend had her with Dr today and he again said it was probably an anal fissure, she also had some blood in her urine so he wants ...

hi we have had two very good weeks and our 3 year old daughter is making good progress but would appreciate your views or comments or shared experiences on the following. Since September Rachel has had about 12 episodes of blood in stools and quite significant amounts. At our last hospital visit the...