Click on a topic below to find information about that section of hspsupport.org, then use the links in the navbar on your left to go to that page:

• Diagnosed! Now What?

If you or your child has just been diagnosed, chances are good that you've never heard of HSP before now. Click on After Diagnosis at the left to learn more about HSP, including symptoms, diagnosis, treatment and long-term prognosis.

Important: if you have not been diagnosed, and you have any of the symptoms listed there - or even all of them - that is still not a guarantee that HSP is the correct diagnosis. Seek professional medical care immediately; only a doctor can diagnose you conclusively.

• How Should We Deal With This?

A diagnosis of HSP can be overwhelming, and no two families will deal with it in exactly the same way. But many families have been through this before. Click the Coping Strategies page at the left, or here, particularly if your child is the patient.

• Links and Resources

As with any long-term illness, educating yourself about the condition is important. Our Links page at the left - or here - is where you'll find links to helpful resources and articles.

• Talk with others

HSP is a rare disorder. When your child is diagnosed, it can be particularly confusing or frightening, and talking with others who understand what your family is going through can really help your spirits. Come visit our Discussion Board to find a network of support with others in similar circumstances (just close the board window when done to return here). We also have a page specifically for children with HSP to talk to each other, hopefully lessening their feelings of isolation and fear of the unknown.

• HSP Families

See other families' stories, and share your stories, pictures and videos here.

• Who We Are

The admins of this site are a married couple living in the southern United States. Our daughter was diagnosed with HSP in March of 2008, just after her seventh birthday. If you would like to read our personal story, see our story on the HSP Families page. If you would like to contact us regarding HSP or the site, use the Contact Page.